Caregiving
Planning AheadshadowProviding Home CareshadowPreparing Your HomeshadowHousing OptionshadowLegal And InsuranceshadowEnd of Life

Resources: Navigating the World of Caregiving

Planning Ahead: AARP Resources

Driver Safety
http://www.aarp.org/drive/
Find information on driver safety, classes to take near you, and what warning signs to look out for when evaluating whether someone should stop driving.

Family Caregiving: Caring for Those You Care About.
http://www.aarp.org/learntech/family_care/
Take these free online seminars to learn more about caregiving. Then test yourself with interactive quizzes.

Ginzler, Elinor and Hugh Delehanty. Caring for Your Parents, The Complete AARP Guide
http://www.aarpmagazine.org/books/books_caring.html

How Employers Can Support Working Caregivers
http://www.aarp.org/money/careers/employerresourcecenter/retention/
how_employers_can_support_working_caregivers.html

Learn more about companies that are providing eldercare benefits to their employees and why it is smart business to do so.

National Preparedness Month
http://www.aarp.org/families/caregiving/caring_help/nat_prep_month.html
Find brochures to help older Americans prepare for emergencies.

Prepare to Care: A Planning Guide for Families
http://www.aarp.org/foundation/preparetocare
This five-step guide helps you set up a caregiving plan for your family and find resources before a crisis occurs.

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Planning Ahead: Best of the Web

Children of Aging Parents
http://www.caps4caregivers.org/index.htm
Find information on caregiving, search for local support groups, or join an online support group (800-227-7294).

Eldercare Locator
http://www.eldercare.gov/Eldercare/Public/Home.asp
Locate services and resources for older adults in any U.S. community. This site links older adults and their caregivers with state, local, and community agencies on aging (800-677-1116).

Family Caregiver Alliance: National Center on Caregiving
http://www.caregiver.org
Find caregiving articles and a handbook for long-distance caregivers, search resources and programs available to caregivers in all 50 states, and learn about the group’s workshops, some available through teleconference (800-445-8106).

Family Caregving 101
http://www.familycaregiving101.org/
This website, brought to you by the National Family Caregivers Association and the National Alliance for Caregiving, is a great place to find helpful advice.

International Longevity Center
http://www.ilcusa.org/pages/about-us.php
The center is a nonprofit and nonpartisan international research, policy, and education organization formed to educate individuals on how to live longer and better.The center also offers caregiving resources and information.

National Family Caregiver Support Program
http://www.aoa.gov/prof/aoaprog/caregiver/caregiver.asp
Find fact sheets and survival tips for caregivers on issues such as transportation, emergency readiness, and adult day care.

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Planning Ahead: Related Articles & Books

Capossela, Cappy and Sheila Warnock. Share the Care: How to Organize a Group to Care for Someone Who is Seriously Ill. Fireside, 1995.

Carter, Rosalynn. Helping Yourself Help Others: A Book for Caregivers. Random House, 1994.

Carton, Emily. “Questions & Answers: Aging and Aging Parents.” Self-Help and Psychology Magazine, 2007.
http://www.selfhelpmagazine.com/qa/qaage/index.shtml

Levin, Nora Jean. How to Care for Your Parents: A Practical Guide to Eldercare. W.W. Norton, 1997.

“Long-Distance Caregiving.” University of California, Santa Barbara Human Resources Department, 2007. http://hr.ucsb.edu/worklife/elder_care_longdistance.php

Loverde, Joy. Complete Eldercare Planner: Where to Start, Which Questions to Ask, and How to Find Help. Times Books, 2000.

Massier, Elfriede. “As We Grow Older: Relating to Our Aging Parents.” Washington State University, Cooperative Extension, 1994. http://cru.cahe.wsu.edu/CEPublications/eb1766/eb1766.html

Morris, Virginia and Robert M. Butler. How to Care for Aging Parents. Workman Publishing, 2004.

Stone, Douglas, Bruce Patton, and Sheila Heen. Difficult Conversations: How to Discuss What Matters Most. Penguin Books, 2000.

“What If Your Parent is Sick, But Won’t Admit It?” North Carolina Division of Aging and Adult Services.
http://www.ncdhhs.gov/aging/article.htm#a160

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Providing Care At Home: AARP Resources

Health Conditions
http://www.aarp.org/health/healthguide/
Search for information on Alzheimer’s disease, osteoporosis, and other health conditions.

Help Older Family Members Keep Reading in Their Lives
http://www.aarp.org/families/caregiving/caring_help/help_older_family_
members_keep_reading_in_their_li.html

Learn about Talking Books, a free program offered by the Library of Congress and the National Library Service for the Blind and Physically Handicapped.

Medicines and You
http://www.aarp.org/medicinesandyou
This free online seminar can help you learn more about your prescription drugs, learn how to manage your medications, and gain some ways to make your doctor’s visits as successful as possible.

Online Consumer Guide to Effective and Safe Prescription Drugs
http://www.aarp.org/health/comparedrugs/
Look up information about specific prescription drugs either by medication name or health condition.

Pandya, Sheel.“Adult Day Services.” AARP Public Policy Institute, 2004.
http://research.aarp.org/il/fs98_service.html

Using Medications Wisely
http://www.aarp.org/usingmeds
Find links to online tutorials, consumer guides, and other tips about medications and their uses and side effects.

Research Your Health
http://www.aarp.org/researchhealth
Complete this free online seminar and learn how to research your own health.

Valuing the Invaluable: A New Look at the Economic Value of Family Caregiving
http://www.aarp.org/research/housing-mobility/caregiving/ib82_caregiving.html
Access this June 2007 report on the financial implications of caregiving on caregivers, as well as the economic value of their contributions.

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Providing Care At Home: Best of the Web

Alzheimer’s Association Carefinder
http://www.alz.org/carefinder/index.asp
Get information and resources on planning ahead, care options, and coordinating care.

Eldercare Locator
http://www.eldercare.gov/Eldercare/Public/Home.asp
Locate services and resources for older adults in any U.S. community. This site links older adults and their caregivers with state, local, and community agencies on aging (800-677-1116).

Home Health Care Compare
http://www.medicare.gov/HHCompare/Home.asp
This tool provides information on how well home health agencies in your area care for their patients.

Lotsa Helping Hands
http://www.lotsahelpinghands.com
Coordinate rides and other services for your loved one using a group calendar that only family, friends, and volunteers can access.

Meals on Wheels Association of America
http://www.mowaa.org
Find a center to provide home-delivered, nutritious meals to your loved one (703-548-5558).

Myers Research Institute of Menorah Park Center for Senior Living
http://www.menorahpark.org/research.htm
Learn more about this group’s gerontological research and the ways they are using Montessori-based activities to engage people with dementia.

National Adult Day Services Association, Inc.
http://www.nadsa.org
Get the facts on adult day services and find a location in your area (800-558-5301).

National Association of Professional Geriatric Care Managers
http://www.caremanager.org
Find a local care manager, and learn more about geriatric care.

National Association of Social Workers
www.helpstartshere.org
Find resources and tip sheets for caregivers, as well as a directory of social workers who specialize in working with older persons and their caregivers.

National Respite Locator Service
http://www.respitelocator.org
Search for local respite services including programs that specialize in conditions such as Alzheimer’s, epilepsy, and autism (919-490-5577).

Share the Care
http://www.sharethecare.org
Share caregiving advice and stories, and learn how to organize a group for a loved one.

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Providing Care At Home: Related Articles & Books

Abramson, Alexis. The Caregiver’s Survival Handbook: How to Care for Your Aging Parent without Losing Yourself. Perigee Books, 2004.

“Adult Daycare.” University of Texas Medical Branch.
http://www.utmb.edu/aging/outreach/archive/adacare.htm

The Agency for Healthcare Research and Quality. “The Pocket Guide to Staying Healthy at 50+.” http://www.ahrq.gov/ppip/50plus/

Berman, Claire. Caring for Yourself While Caring for Your Aging Parents. Henry Holt and Co., 1996.

Mace, Nancy L. & Peter V Rabins. “The 36 Hour Day: A Family Guide to Caring for People with Alzheimer Disease, other Dementias, and Memory Loss in Later Life.” Baltimore: The Johns Hopkins University Press, 2006.

Orr, Anissa. “Women and Stress.De-stress for success” Baylor College of Medicine, 2003. http://www.bcm.edu/findings/vol1/is4/03apr_n2.htm

“Plain Talk about Handling Stress.” National Institute of Mental Health. http://www.thebody.com/nimh/stress.html

Schmall, Vicki L., and Ruth E. Stiehl. “Coping with Caregiving: How to Manage Stress When Caring for Elderly Relatives.” Purdue University. http://www.agcom.purdue.edu/AgCom/Pubs/CFS/CFS-455.html

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Preparing Your Home: AARP Resources

Home Design
http://www.aarp.org/families/home_design/
Learn about ways you can make your home safer as you age.

Home and Community Booklets
http://www.aarp.org/families/home_design/universaldesign/home_and_
community_booklets_online_order_form.html

Order free brochures on home modification and learn how to increase safety in different areas of your home.

Certified Aging-in-Place Specialists
http://www.aarp.org/caps
Find a certified aging-in-place specialist in your area with this tool developed by AARP and the National Association of Home Builders.

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Preparing Your Home: Best of the Web

The Center for Universal Design
http://www.design.ncsu.edu/cud/about_ud/udprinciples.htm
Learn more about Universal Design, its history, and some current UD projects from this NC State University website.

Fall Prevention Center of Excellence
http://www.stopfalls.org/individuals_families/if_em.shtml
Find a list of tip sheets, websites, and articles on ways seniors can prevent falls.

Homemods
http://www.homemods.org/pages/products.shtml
Find a list of resources to help consumers choose products to improve the safety of their home.

National Association of Home Builders
http://www.nahb.org/generic.aspx?genericContentID=8484
Find information on certified aging-in-place specialists, as well tips on universal design, remodeling, and maintaining your home (800-368-5242).

The National Resource Center on Supportive Housing and Home Modification (NRCSHHM)
http://www.usc.edu/dept/gero/nrcshhm/
Find the latest research, guidebooks, and fact sheets on home modification, as well as workshops and Internet courses on supportive housing or modifications to help people age in place.

Universal Designers and Consultants
http://www.universaldesign.com
Sign up for a newsletter, participate in discussions with industry experts, and check out the Universal Design store (301-270-2470).

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Housing Options: Best of the Web

The American Association of Homes and Services for the Aging
http://www.aahsa.org
Read consumer information, fact sheets on aging services, and updates on recent legislation.

Assisted Living Federation of America
http://www.alfa.org
Gather information on assisted living communities, and search for facilities near you.

Care Pathways
http://www.carepathways.com/NHx.cfm
Read about nursing homes, find one locally, and order inspection records on specific facilities.

The National Center for Assisted Living
http://www.ncal.org
Find resources, consumer information, and publications on assisted-living facilities.

National Citizen’s Coalition for Nursing Home Reform
http://www.nccnhr.org
Get information on nursing home reform, and find contacts from programs such as the National Long Term Care Ombudsman Resource Center (202-332-2275).

Nursing Home Compare
http://www.medicare.gov/NHCompare/home.asp
Learn about the past performance of every Medicare- and Medicaid-certified nursing home in the country.

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Legal and Insurance: AARP Resources

AARP Foundation Benefits QuickLINK
http://www.aarp.org/quickLINK
Use this online search tool to find out if your older relative qualifies for a wide range of public benefits and services, including help in paying for prescription drugs. Also access fact sheets, applications, and contact information for local agencies.

AARP Foundation Money Management Program
http://www.aarpmmp.org
This program offers daily money management services to low-income older or disabled adults who have difficulty tracking financial matters.

Guardianship
http://www.aarp.org/families/caregiving/caring_parents/a2003-
11-07-Guardianship.html

Learn about what it takes to establish guardianship and what it means to serve as a guardian.

Health Coverage
http://www.aarp.org/healthcoverage
Find more information on Medicaid, HIPAA, and other health care coverage issues.

Homemade Money: A Consumer’s Guide to Reverse Mortgages
http://www.aarp.org/learntech/personal_finance/a2003-05-12-
homemademoney.html

Take this free online seminar to learn how reverse mortgages work.

Legal Issues
http://www.aarp.org/money/legalissues
Access a legal glossary, a step-by-step process to help prepare your will, and information on AARP’s legal services network.

Medicare Interactive Counselor
http://www.aarp.org/health/medicare/medicare_interactive_counselor.html
Use this tool to help guide you through Medicare’s benefits, including how the program can help with home health care, convalescent care, and long-term care.

Palermo, Michael T. The AARP Crash Course in Estate Planning: The Essential Guide to Wills, Trusts, and Your Personal Legacy. Sterling, 2004.
http://www.aarpmagazine.org/books/books_estate_planning.html

Retirement Planning
http://www.aarp.org/money/financial_planning/sessionseven/retirement_
planning_overview.html

Take this online seminar to learn more about planning for retirement. The site includes information on individual retirement accounts (IRAs), Roth IRAs, 401(k)s, and Social Security benefits.

“Sites to See: Scam Prevention.” AARP Bulletin, 2002.
http://www.aarp.org/bulletin/consumer/Articles/a2003-06-30-scamsites.html

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Legal and Insurance: Best of the Web

Administration on Aging: Elder Rights and Resources
http://www.aoa.gov/eldfam/Elder_Rights/Legal_Assistance
Access eldercare resources, including links to legal assistance and hotlines (202-619-0724).

American Bar Association: Consumers’ Guide to Legal Help
http://www.abanet.org/legalservices/findlegalhelp/probonodirectory.html
Use this searchable online directory to find lawyer referrals, court information, and free legal services in every state.

Federal Trade Commission Bureau of Consumer Protection
http://www.ftc.gov/bcp/about.shtm
Receive consumer information or learn how to file a complaint (1-877-382-4357).

Legal Services Corporation
http://www.lsc.gov
Find out more about this group, which provides civil legal assistance to low-income adults (202-295-1500).

National Academy of Elder Law Attorneys
http://www.naela.com
Learn about this organization, which assists lawyers and bar organizations in their work to provide specialized legal services to older adults and their caregivers.

National Consumer’s League
http://www.nclnet.org
Find information on a number of topics including fraud, health, and workers' rights (202-835-3323).

National Do Not Call Registry
http://www.donotcall.gov
Register online to stop telemarketing calls.

National Guardianship Association
http://www.guardianship.org
Find information and resources on the legal process of guardianship (520-881-6561).

National Fraud Information Center
http://www.fraud.org/info/repoform.htm
Use this service to report Internet or telephone fraud (800-876-7060).

Financial Security & Planning

American Association of Daily Money Managers
http://www.aadmm.com
Locate a local money manager who can complete tasks for you such as paying bills, balancing checkbooks, and preparing and delivering bank deposits (877-326-5991).

Financial Planning Association
http://www.fpanet.org/
Learn more about financial planning, and locate a planner in your area (800-322-4237).

Fitch, Inc.
http://www.fitchibca.com
Get up-to-date information from this rating agency, which judges creditworthiness of different investment options (800-893-4824).

Moody’s
http://www.moodys.com
Access credit ratings, find financial information about capital markets, and locate an investment analyst near you (212-553-0377).

National Association of Personal Financial Advisers
http://www.napfa.org
Find consumer information about financial planning and gain access to local financial advisors (800-366-2732).

Social Security Administration
http://www.ssa.gov
Find answers to your Social Security questions, plan for your retirement, and use the online benefit calculator (1-800-772-1213).

Standard & Poor’s
http://www.standardandpoors.com
Access investment research, risk evaluations, and independent credit ratings (212-438-7280).

Today’s Seniors
http://www.todaysseniors.com/
Find information on life after retirement, including advance directives, 401(k) retirement plans, and advice on how to improve your quality of life.

Internal Revenue Service Medical and Dental Expenses
http://www.irs.gov/pub/irs-pdf/p502.pdf
Access a complete list of what you can and cannot deduct as medical expenses.

Medicare and Medicaid

The Center for Medicare Advocacy
http://www.medicareadvocacy.org/
This center provides education, advocacy, and legal assistance to help older people and people with disabilities obtain Medicare and their necessary health care.

Medicare
http://www.medicare.gov/
Learn more about Medicare coverage. Go to “Search Tools” to compare health plans in your area and to learn about Medicare eligibility (1-800-MEDICARE or 800-633-4227 or TTY 877-486-2048 for the hearing and speech impaired).

Medicare Rights Center
http://www.medicarerights.org
Learn more about Medicare from the largest independent source on the federal program.

Medicare Interactive
http://www.medicareinteractive.org/page2.php?topic=counselor
Learn more about you or your loved one's rights and benefits with Medicare, including what you need to know about Medicare’s drug coverage (Part D), how to appeal if coverage or care is denied, and much more. You must set up an account to access the site’s information.

Medicare Prescription Drug Plan Finder
http://www.medicare.gov/MPDPF/Public/Include/DataSection/Questions
Compare Medicare prescription drug plans and find one to meet your needs.

Medicaid
http://www.cms.hhs.gov/home/medicaid.asp
Learn more about Medicaid. If your income is limited, contact your local office by looking in the government section or blue pages of the telephone book to find out if you qualify for help in paying for healthcare or prescription drugs.

Social Security Administration Prescription Help
http://www.socialsecurity.gov/prescriptionhelp/
Learn more about how to get help paying for your monthly premiums, annual deductibles, and prescription co-payments with Medicare Part D (1-800-772-1213).

State Health Insurance Assistance Program (SHIP)
http://www.shiptalk.org
This group provides counseling and assistance to people with Medicare. Locate your state SHIP and get help with health insurance questions.

Medicare Supplemental (Medigap) and Long-Term Care Insurance

A. M. Best
http://www.ambest.com
Get ratings and analyses on insurance companies and banks.

National Association of Insurance Commissioners
https://external-apps.naic.org/ofrs/consumerLegal.do?appType=CONSUMER
Use the online fraud reporting system to expose suspected insurance scams.

Weiss Research
http://www.weissratings.com
Find ratings for long-term care insurance, Medicare supplemental insurance, and more (800-289-9222).

Additional Public Benefits

Energy Assistance
http://www.acf.hhs.gov/programs/liheap/
The Low-Income Home Energy Assistance Program (LIHEAP) is a federally funded program that helps eligible low income homeowners and renters meet their home heating and/or cooling needs.

Foods Stamps
http://www.fns.usda.gov/fsp/
Learn more about this Food and Nutrition Service program, which offers benefits to those with low incomes so they can buy food and improve their diets.

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Legal and Insurance: Related Articles & Books

“Choosing a Medigap Policy, 2004: A Guide to Health Insurance for People with Medicare.” Center for Medicare and Medicaid Services. U.S. Department of Health and Human Services, 2004.

“Medicare and You: 2007.” Center for Medicare and Medicaid Services. U. S. Department of Health and Human Services, 2007. Updated annually.

Burns, Sharon, and Raymond Forgue. How to Care for Your Parents’ Money While Caring for Your Parents: The Complete Guide to Managing Your Older Parents’ Finances and Planning for Their Future. McGraw-Hill, 2003.

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End Of Life: AARP Resources

Grief and Loss
http://www.aarp.org/families/grief_loss/
Find information on making funeral arrangements, dealing with financial issues, and coping with loss.

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End Of Life: Best of the Web

Aging with Dignity
http://www.agingwithdignity.org
Access “Five Wishes,” a document that takes into account loved one's your emotional, physical, and spiritual needs and allows you to express how you want to be treated if you are seriously ill or unable to speak for yourself. (888-594-7437).

Association for Death Education and Counseling
http://www.adec.org
Learn how to cope with death and the loss of a parent and other loved ones.

American Psychiatric Association
http://www.psych.org/dbs_state_soc/db_list/db_info_dyn.cfm
Find contact information for your district’s branch of the American Psychiatric Association. They can help you locate a psychiatrist near you from among the organization’s 36,000 physicians (202-682-6220).

American Psychological Association
http://www.apa.org
Locate a psychologist by zip code, city, or state (800-964-2000).

HospiceNet
http://www.hospicenet.org
Learn more about hospice care, arranging time away from work, and the best ways to handle grief.

National Association for Home Care and Hospice Agency Locator
http://www.nahc.org/AgencyLocator/
Find the right provider for you from a database of 20,000 home care and hospice agencies.

National Hospice and Palliative Care Organization
http://www.nhpco.org
Get help locating the hospice programs closest to you, finding information on hospice Medicare benefits, and learning how to best communicate end-of-life wishes (800-658-8898).

National Resource Center on Diversity in End-of-Life Care
http://www.nrcd.com
Find out more about this program that works to improve end-of-life care for culturally diverse populations.

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End Of Life: Related Articles & Books

Angel, M. D. The Orphaned Adult. Human Sciences Press, 1987.

Byock, Dr. Ira. Dying Well: Peace and Possibilities at the End of Life. Riverhead Trade, 1998.

Byock, Dr. Ira. The Four Things That Matter Most: A Book About Living. Free Press, 2004.

Caregiving & Loss: Family Needs, Professional Responses. Hospice Foundation of America, 2001.

Doka, Kenneth J. et al. Living with Grief: Loss in Later Life. Hospice Foundation of America, 2002.

Donnelly, K. Recovering from the Loss of a Parent. Dodd, Mead & Co., 1987.

Kubler-Ross, Elizabeth. On Death and Dying: What the Dying Have to Teach Doctors, Nurses, Clergy, and Their Own Families. Collier Books, 1969.

Lynn, Joanne M.D. and Joan Harrold. M.D.Handbook for Mortals: Guidance for People Facing Serious Illness. Oxford University Press, 2001.

Morris,Virginia. Talking about Death Won't Kill You. Workman Publishing, 2001.

Myers, E. When Parents Die: A Guide for Adults. Viking, 1986.

Rando, Therese. How to Go on Living When Someone You Love Dies. Lexington Books/Bantam Books, 1991.

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© 2003, 2004, 2007 AARP. Reprinting by permission only.


 
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